American

DermatoEpidemiology Network 

pSOAR sponsored

International Consensus Conference on Psoriasis

AAD 2013 (Miami, FL)

Held Monday, March 4, 2013 6:30 -10:30 pm (dinner was provided through the generous sponsorship of the Dermatology Dept of Northwestern University )

The meeting was quite successful. An International group of participant from multiple areas of research contributed to the event. These included psoriasis investigators in and out of academics, CROs, IRBs, industry,
National Psoriasis Foundation, AAD, and more. A collaborative effort with IDEOM took place successfully in Toronto in July 2013 immediately following the GRAPPA 2013 yearly meeting. This effort is to continue with a IDEOM meeting in Rome, 10-12 April 2014.

The meeting announcement which explains the goals and objectives:


You are invited you to a multi-stakeholder international consensus conference on clinical research in the treatment of psoriasis to be held at the time of the American Academy of Dermatology (AAD) Annual Meeting on Monday, March 4, 6:30-10:00pm. This conference, while not affiliated with nor endorsed by the AAD, is jointly sponsored by the Academy’s Dermatoepidemiology Expert Resource Group (ERG) and its Psoriasis ERG. As you may know, the ERGs are loosely affiliated with the Academy and are designed to further research and patient care in their respective disciplines.

The purpose of this invitation-only conference is to bring together leaders in psoriasis therapeutics so that pressing issues that affect ongoing clinical research can be addressed in an efficient manner, with the advice and collaboration of disparate constituencies and interest groups. Specifically, we are inviting dermatologists active in clinical trials research, medical affairs personnel from industry partners, regulatory officials (including those from the FDA and CMS), patient advocates, basic scientists, and key staff of medical professional societies.

If you chose to attend, prior to the start of the conference, we will provide emailed materials for your review, so that the work of the conference can be efficient when we meet. The goal will be to develop a consensus roadmap document, to be submitted for publication in the dermatology literature, that can guide future investigative work in psoriasis.

Please note that we regrettably cannot underwrite the cost of your travel or accommodations to attend this conference. There will be no registration fee for attending the conference, which will be underwritten by the Northwestern University Department of Dermatology. This conference is not sponsored by any commercial or regulatory agency. All participants who choose to provide their consent will be invited to be co-authors on any resulting scientific publication.

To ensure that the conference addresses issues considered most important by experts like yourself, we are asking that you please consider replying by email to the query below. In particular, our steering committee has identified two possible conference agendas. Given the limited time available for our deliberations, we ask whether you would rather explore needs assessment in psoriasis research, or tools for measuring outcomes in psoriasis research, or both. Please complete the brief form below and forward it to svenecek@nmff.org.

Supplementary materials:

  • The first folder, labeled IDEOM, contains three files describing the project spearheaded by Dr. Alice Gottlieb and others to rationalize psoriasis outcomes measures based on the OMERACT methodology developed in rheumatology.
  • The second, labeled Acne/HOME, includes an article describing a Delphi process to rate acne severity, as well as proceedings and articles pertaining to HOME, Harmonising Outcome Measures for Atopic Eczema.
  • The third, labeled IMMPACT, includes articles describing recommendations and research studies from the Initiative on Methods, Measurement, and Pain Assessment in Clinical Trials.